Spring 2013

I took a walk this morning.  I take Lucy and set off down the street.  I say hello to neighbors and wave at friends dropping their kids off at the elementary school where I’d just let Elena out of the car not long before.  It is a cool cloudy morning.  The trees and grass are still wet from the storm that swept through at about 1am and I occasionally feel raindrops that fall from the trees I’m walking under.  The air smells fresh, like it does after a good storm.  Everything looks washed clean.

I turn to walk through the park and I notice that for the first time in months, I can walk at my normal pace and I’m not winded by the time I get to the top of the hill that occurs about halfway through.  I continue up the next hill and the next and I’m doing it.  I’m walking fast and breathing hard, but I’m not panting and I’m not feeling like my heart is going to thump right out of my chest. And when I meet a friend who is out for her morning run and she asks me if I’m a runner, I say “I used to be and I’m thinking about starting up again.”  And I mean it.

I’ve been on a break from treatment.  My last chemo was given at the end of January.  After two and a half years of pretty constant treatment I was feeling pretty beat up physically, emotionally, and spiritually.  I did not share the depths of my despair with anyone except my husband and I did that only reluctantly.  Because while I appear to be the gal that will tell you anything and everything and more than you ever wanted to know, I tend to keep the really hard stuff buried deep and tightly held.

So together with Dr. Eyelashes, we all decided that I would take some months off.  There was so much coming up and I wanted to feel good for all of it.

It has been so worth it.  I had an amazing birthday celebration that was never ending.  I went on an incredible spring break trip to the beach and just had a great weekend with Elena in New York City.  And I was fully present for all of it.  I feel like my old self.  I’ve lost weight and the puffiness in my face is gone.  My hair has grown back in (a bit) and I am no longer wondering how much longer it will be til I can go back to bed after I get up.

I’ve taken a break from cancer and it has been wonderful.  Part of that break was also stepping away from writing here on this space.  I tried a couple of times, but I just wasn’t finding the words and I’ve never wanted to write just to put words on the page.

This morning I felt the urge to write well back up in me.  Thank you to those of you who have been wondering where I was and worrying about me because of my silence.  I just had to walk away from being “cancer girl” for a while.

I’ll have a scan in a couple of weeks.  Of course we are praying that even in the absence of treatment, the cancer has not come back.  If that is the case, I will continue to be on this break.  If we see activity, I will go back on the same treatment I was taking.  I feel strong enough to tackle it again and because I did not become resistant to it, believe it will continue to work just as it always has.

Another spring has come.  The third since my diagnosis.  We can hardly believe the grace that continues to abound.  It’s a time of new beginnings.

I’m so thankful.

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Breathing Again

I didn’t even know I’d been holding my breath.  But I certainly must have been, because  I could feel my lungs expand as if I’d suddenly broken the surface of the water after a mighty long swim from the bottom.

“I don’t see anything that concerns me.”

That would be Dr. Eyelashes giving me the news on my latest scan.  Usually I make an appointment to go over everything with him in his office, but this time we decided that he would just call me.  I’m not sure I’ll agree to that again.  With an appointment I know when the torture of not knowing will end.  This time I was just on pins and needles all day.  Trying to act normal at lunch with a new friend.  Trying not to check my phone every five seconds in case I’d missed his call.  I don’t know how that could have happened since I had the ring tone turned up loud enough for my friends in another state to hear it.

When the call finally came I was standing looking the vast array of cheeses at my local market.  I hope people passing by just thought I was crying over all the lovely types of brie I was contemplating, but the truth was that I just couldn’t keep the tears back.  And then all the adrenaline that I’d been carrying around all day hit and I was still shaking when I handed my credit card over to the sweet cashier who always tells me she is praying for me.  Lordy mercy.

The good doctor and have been talking about taking a treatment break if this last scan was a good one.  We will have to wait on the final read from the radiologist, but we are not expecting any news that would alter our plans.  There are a couple of nodes up near the top of my trachea and behind my thyroid that we have been keeping an eye on.  They don’t seem to be changing but they also don’t seem to be going anywhere.  They do not worry my oncologist and so I mostly choose not to let them worry me.  My sister wants them to go in and just remove them and that is certainly something I’ll talk to the doctor about.  Conventional wisdom would say that it wouldn’t make any difference in the long run, but we strayed off that path long ago.

So I’d ask for your prayers as we make some hard decisions in the next couple of weeks.

And thanks for all the good wishes.

xoxoxoxo

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Warning: I’m about to brag

Katie has been involved with a thing called Power of the Pen for the last two years. Basically it is a creative writing contest consisting of tournaments on the district, regional and state level.  I’m sad that it is only available in Ohio because it is a fantastic program.  The kids are divided into groups of 5-6, given a prompt and the clock starts.  For forty minutes they write fast and furiously.  Their papers are read by a set of judges and scored.  There are three rounds and at the end of the each round the number one ranked paper in each group is read by a separate group of “master readers” and a top paper from each round is selected.

During the awards ceremony the top 15 writers from both the 7th and 8th grades are announced.  The top paper from each round is also given an award and finally, the team awards are given out to the school whose team scored the highest overall.  There were probably about 180 writers there yesterday divided pretty evenly between the two grades.

Okay, so this is where the bragging starts, and if you aren’t family you might just want to stop reading right now.

You’ve been warned.

Katie placed 11th overall for the 8th grade and took the award for the top paper in round 1.  Her 8th grade team took the first place team trophy.  Another of her teammates took 2nd place overall and the 7th graders from Oakwood also had a very strong showing.  We were so very proud of all of them.

Here is Katie’s paper that won best of round.  The prompt was:  If you laugh at yourself, nobody else will beat you to it.

And I am officially finished bragging.

For now :)

Laughing

 

            My mother always told me that to be able to laugh at yourself was the most important skill out there.  She said that everybody would respect you if you had this ability.  But whenever I try, it always turns out badly.

Where I live everything is white.  They say that color excites us.  Everything is made out of cold, shiny metal, so gray that if you look at it for too long, you can feel yourself starting to shiver, as if your soul was slowly turning into ice and if you hit yourself with a hammer you would slam into the floor and shatter into a million pieces.

It’s lunchtime.  Normally you stay in your room with its white-as-a-dove feather bed and one single solitary chair.  At meal times and outside play however, you can leave that horrid room.

Betty, the nurse, opens my door.  Her brown hair is tucked under her white cap.  One button is undone on her dress today, revealing her fleshy skin underneath.  It’s hilarious!  I start to laugh.  The sound resonates off the furniture and bounces into the hall.

“Mr. Bohman, Mr. Bohman,” Betty says, stepping into the room, “it’s time for the midday meal.”  She steps closer to me and her heels sink into the carpet.  She grabs my arm.

“Oh!  A little rough today, aren’t we?  A little feisty!”  I smile and start to cackle again at my own wit.

“Come on, Mr. Bohman.”

We walk down the hall.  We pass no pictures or paintings on the wall:  no mirrors or flowers can be seen.  “Too exciting,” they say.

Entering the kitchen, moans and cries filter through the air.  Some people just like to complain.  Others, like me, just find the joy in life.

“Joeyyyy!  My man!” I shout across the room.   A man, my friend Joey, raises his head and pretends to shoot me with two fingers.  I double over, then straighten up, both Joey and I laughing hysterically.

“Mr. Bohman, Mr. Bohman, stop.  You’re sixty-three.  You are much too old to be playing games like this,” Betty says to me, her hips firm and her eyes cold and hard.  She pulls me up to the first counter and we pass a sign that reads” Oklahoma Mental Institution”.

“Oatmeal or chicken soup?” she asks, gesturing.  I look at the food and shudder.  The oatmeal?  More like oat-vomit.  The soup?  Well, I don’t even know where to start on that one.  A silver spoon sticks out of the oat-lump and an idea pops into my head.

“Light bulb!” I shout and grab the spoon.  A cold, gray, oozy lump of oat-gross clings to its metal surface.  I grip the spoon and launch it over my head, back towards the eating area.  It smacks the sign, which now reads “Oklahoma Me_tal Institution”.

“OH MY GOD,” I cry, doubling over in hysterics, “METAL INSTITUTION!”  Waves of laughter roll through my body, similar to the waves you see at the ocean, rolling into the sand and spilling onto towels and sand castles.

“Mr. Bohman! Stop! Control yourself!  Remember what the doctor said!” Betty warns.

“Too late.”  I manage to squeeze out.  I’m on the floor now, rolling back and forth on the white tile floor.  Betty hits a button on the wall and two giant men come barreling through the door, startling a few patients.  One of them, an elderly woman, starts to cry.  They reach me and grab my legs and arms, pinning them to the floor.  A giant needle shows itself and one of the men inserts it into my arm.  I scream as the cooling fluid sifts its way into my bloodstream.

I wake up on my bed, laughing.

Posted in Bloggable Moments, Family, Kids | 9 Comments

Tumbling Down

“Mama!  Daddy fell off the ladder and hurt his ankle!”

I’d just gone upstairs to lie down.  The chemo I took on Wednesday was taking its toll and I’d been looking forward to snuggling down under my electric blanket for an hour or so.  I get chilled easily these days and I could almost feel the warmth coming off the bed as I slipped between the sheets.

I went downstairs to find JD sitting on the couch.  He’d already gotten both shoes off and was looking at his ankles with a grimace on his face.  He was ghost white and shaking.

He’d put the ladder up against the house in the front to take the last of the Christmas decorations down.  We will never know exactly what happened but the ladder slid out from under him, he dropped about 10 feet and landed on both feet on the front stone porch.  He was able to get into the house under his own power, but now his ankles were both looking very ugly and were actually swelling right before our eyes.

“Hmmmm.  I guess we better go to the ER.”

And so we did.  Five hours and two splints later we were back home again trying to figure out how to get someone who can’t really bear much weight on either leg up the stairs and into bed. (There was lots of grunting and moaning involved).  The x-rays taken at the hospital didn’t reveal any bad fractures but we will wait on the final reading on Monday and probably see ortho sometime next week.

I’ve been reading a book about excess lately.  One of the chapters deals with the business of our lives.  The way we say we have no time but continue to add things to our calendar anyway.  We can’t find it in ourselves to say no even when it is driving us crazy.

So perhaps this is a gift.  A time that will force us to slow down.  Today we have spent the day reading the paper.  The girls are quietly doing their thing and Lucy is wondering why no one is moving around much.  We are perhaps resting on the Sabbath for the first time in a very long time.  The tv is off, a pot of soup is on the stove and snow is falling periodically outside the big picture window in our den.

We are so thankful.  It could have been a whole lot worse.  I’m sure there will be some frustrating days ahead as JD gets back on his feet, but for now we will appreciate the good that comes with the bad and enjoy a little slower pace for a few days.

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North and South

We always laugh about the difference in conversations that go on between people when we are in New York visiting JD’s family and in Tennessee visiting mine.  We think we have the best of both worlds in this crazy mixed culture marriage of ours.

Case in point.

The last time we were at my house we were walking up to my brother and sister-in-law’s house along the 1/4 mile driveway that connects their house with my parent’s abode.  We were stopped in our tracks by a mound of scat (translation: poop) in the middle of the road.  Thus commenced a five to ten minute conversation on just what animal it came from.  We started off with the possibility that it was bear poop as there have been some recent sightings of black bears on the mountain.  (The children are no longer allowed to walk between the two houses after dark.)  We then decided maybe it was a smaller animal and I believe we settled on a fox as the culprit before heading on our way.

Cut to JD’s house just a couple of days ago.  We were sitting around the table playing a game with JD’s father and sister and a few of the kids when a classical piece of music came on the radio.  Either JD’s mom or dad said, “What is the name of that piece?” and without a second’s hesitation his sister named it correctly.

See what I mean?  The perfect mix.  We love our families.

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I’m Still Here

Well.

I guess that is what you would call a little blogging break.  I’m not really sure what happened but it just seemed that I’d used up all my words for a while.  JD would tell you that that is just not possible, but there you go.  Apparently, even someone with A LOT to say has to shut up every now and again.

Lots went on in the month of November.  I’ll just hit the highlights for those of you with the stamina to endure such minutiae.

First of all a big thank you for all of you who supported the Free to Breathe event this year.  My team raised over $4500 dollars and won the prize for highest fund raising team for the THIRD year in a row.  Thank you, thank you, thank you.  A million times still would not cover it.

My baby turned 11.  She is a force of nature, that one.  I just keep telling her, “Use your power for good.” Luckily she is only partially aware of the effect she has on people.  When we were home for Thanksgiving she curled up on my brother’s lap at one point and snuggled up all close and I’m pretty sure he would have bought her a car at that moment if she had asked.  Lordy mercy.

We had a great Thanksgiving with my family in Tennessee.  Thanksgiving was not delayed by the butchering of deer this year and the pot full of boiling oil did not burst into flames so we are calling it a success.  We had a great time together.  We visited Rock City and saw all the gnomes and Christmas lights which was a lovely way to start the holiday season.

But perhaps the most fun we had was going out to scope out the 5000 acres of land that a Mennonite group has bought close to my parent’s place.  We saw a few of them and you would have thought we were sighting Sasquatch or something.  We did get a bit confused because we saw some in a car but also saw some in a wagon and we thought perhaps they were Amish instead but that didn’t really make sense.  JD started calling them Amonites, but that sounded like something out of the Book of Mormon and that didn’t seem right, either.  Clearly, we are easily amused and God bless those people for not calling the cops on the car full of people that kept driving around their roads waving at them and grinning like idiots.

Last Monday I had an MRI of my brain.  I’d needed to have it done for a while just to make sure things were okay.  I wasn’t having any symptoms that made us think things were going badly, but my anxiety was sort of climbing so I finally had it done.  Thank goodness it was fine.

And so here we are.  Today was the first Sunday of Advent and we were reminded that Advent starts out in darkness.  It is a season of waiting.  I am going to try to take that to heart this year.  I don’t want to rush the season and I want to focus on what is important.  Easy to say and very hard for me to do.

550 words later it is clear that I have found a few of my words again.

Whew.  I’m sure that’s a relief for everybody :)

Posted in Faith, Family, Health, Holidays | 6 Comments

Team Sara Jane: Year 3

We are the home stretch toward the Free to Breathe event that I’ve been honored to be a part of for the past three years.  I wish I could tell you all of the hard work that goes in to pulling this event off each year.  The people behind the scenes get very little credit for a whole lot of hours put in over the space of 12 months.  I wish you all could meet them.  They are wonderful.

We are doing great with fundraising.  You have been generous as always and we are almost halfway to our goal of $5o00!

This money is used to fund research, education and awareness for lung cancer.  I’ve been part of a team that reviews young researcher grants and I can tell you that there is so much exciting stuff going on out there.  So many exciting new discoveries and ideas that some very smart people are spending their lives researching.

The trouble is that lung cancer is crazily underfunded.  These researchers have to spend a tremendous amount of time raising money to do their research.  Despite killing almost 4 times as many people in a year, lung cancer only gets about $2000 per death in funding compared to almost $20000 per death for breast cancer.

So join us for the race next Saturday if you can.  The more the merrier!  If you can’t make it, I hope you will consider making a donation to help us make our goal.  Just go here and hit the register or donate button.  Find Team Sara Jane and follow the directions.

Thanks so much.  We are so very grateful.

Posted in Cancer, Friends | 2 Comments

Fourteen

 

Katie, this past weekend you turned fourteen.  I am late writing this because instead of spending your birthday quietly at home with a few friends and your family, you and I spent it in Chicago where you and some of your field hockey buddies played in a tournament.  Instead of wearing something cute and blowing out candles, you donned 20 lbs of goalie gear and let other girls drive a very hard little ball right at you.

You never flinched.

That pretty much sums up this last year.  You have dealt with a few things that would have made me run and duck for cover and you’ve chosen to face them head on.  You have dealt with some girl drama (of course you have, you are in the eighth grade) and handled it with a maturity that was astounding to your daddy and I.  May that continue all the rest of your days.

You are changing so quickly.  There is hardly anything left of that little girl we had around for so long.  Suddenly you are almost as tall as me and we are wearing the same shoe size.  A couple of weeks ago I glanced around and saw a beautiful girl with her long brown hair blowing in the breeze.  Her legs went on for miles and she looked happy.

It was you.

You are a good girl.  It is fun to be around you.  You hardly ever have a smart mouth and bad attitude.  Will you stay like this forever?

We love you so much.  Even if we have to compete for your affection with the boys from One Direction.

You are our girl.

Love,

Momma and Daddy

 

 

Posted in Family, Kids, Mothering | 3 Comments

Sweet Beginnings and Our Need for Grace

This past weekend I was asked to be a part of a sweet wedding in Tennessee.  I’ve known the groom since he arrive a bit early weighing not even 5 lbs and I remember thinking that his pacifier was as big as his head.  He had scrawny legs and no butt and we loved him like crazy.  His momma is my dear dear friend that I’ve known since I was three.  The relationships in our families go back at least 4 generations.  Our grandparents were teachers together, our fathers school chums.

Somehow, that little baby grew all the way up and found a beautiful girl to be his forever.  They stood at the front of the church holding hands tightly and grinning like crazy at one another.  Love was everywhere.  They promised to love each other forever.  Come what may.

I couldn’t help but think that THEY HAVE NO IDEA WHAT THEY ARE GETTING INTO!!

It was as it should be.  It is wonderful to remember those early days of courtship and marriage.  But marriage is sometimes hard.  Sometimes you make each other so mad you could spit.  JD confesses to wanting to throw a paint brush at me once as I flounced out of the room and don’t get me started on the state of his home office and how it vexes me.

So when Riley and Ashley asked me to say a little something after reading I Corinthians 13 (the love chapter), this is what I came up with.

This chapter on love is beautiful indeed.  To be reminded of all that love entails and all that it calls us to do is a good thing.  The foundation of your marriage is built on all of the characteristics of these words to the Corinthians.  On a day such as this it is hard to imagine that your life will be filled with anything but the love that we all feel surrounding us in this place today.

However. 

As those of us who have been married more than 6 months know, life has a way of piling things on top of that love and making it hard to find sometimes.  There may come a time….and I’m speaking hypothetically of course…..when you may find yourself in a conversation where your spouse says to you, “clearly our ideas of cleanliness are very different” and your head wants to pop right off your shoulders.

Hypothetically.

And so I think that it is important for us to remember the role that grace and mercy play in our marriages.  There is no other relationship in your life that will give you the opportunity to both experience and practice these attributes more.  If love is the foundation on which our marriages rest, I would put forth that grace is the mortar that helps hold it together.  When we extend grace to one another we are mirroring the grace that God shows us each and every day.  When we choose to focus on the strengths of our spouse and not on their weaknesses we give them a safe place in which to grow and flourish into the person they are meant to be.  Marriage can help sanctify us.   In living together well, we can each sharpen the other in ways we cannot do alone.

So, Ashley and Riley, it is my prayer for the two of you that you will cherish the love that brought you together.  That you will extend grace to one another as needs be and that just as the Bible says about God and his relationship to us, that your mercies toward one another will be new each morning.  May you live together happily all the days of your lives.

May I practice what I preach.

Posted in Faith, Family, Friends, Marriage | 5 Comments

Two Years

Once again, the news was all good from my latest scan.  I feel like I can breathe again for the first time in days.  I always weep when Dr. C tells me the news, but I think it is mostly from relief that the words are out and I’m no longer wondering what the news will be.

We are so grateful for the amazing grace that continues to be ours.

I will continue my treatments once a month.  None of us feel good about stretching out the time between treatments any longer than that and it seems to be a good balance of effectiveness and manageable side effects.

I think that Friday was even more emotional for me because it was on that date two years ago that we got the phone call that changed everything for us.  It was the call confirming my diagnosis.

Two years.  I’m here and doing well TWO YEARS later!

The leaves are changing again.  Our street is ablaze in yellows and reds.  It is once again my favorite time of year.  I do not fear the final leaves falling as I did that first year.  I am here and doing well.  That is all that matters.

I do believe that a big part of why I am still here is because of the excellent care I’ve gotten from my medical team.  We are so fortunate that there are many new and exciting things happening in the lung cancer field.  I know that my long term survival depends on (in part) more medical advances.  We need to stay one step ahead of this disease.

If you’d like to be a part of that, please consider joining my team for our Free to Breathe event coming up on Nov 3.  If you can’t be here to run/walk with us, we appreciate any donation.  We are currently about 1/3 of the way to our $5000 dollar goal.  I think we can get there.

Thank you for your continued prayers.  This is certainly turned into quite the marathon and frankly, there is no end in sight.  I am grateful to you all for sticking with me through it all.

I love you.

Posted in Cancer, Faith | 6 Comments