Mutant

I’ve got two treatments under my belt.  I was afraid I’d forgotten how to do it, but its just like riding a bicycle,  if indeed riding a bicycle makes you nauseous, fatigued and mean as a rattlesnake while you are hyped up on steroids!

The first treatment was a bit weird.  I didn’t really know any of the people in the chemo room.  Lots has changed in the last year since I’d been there regularly.  For someone who might or might not have been voted “chemo queen” that was a bit hard to take.

But the second treatment brought wonderful conversations with two other patients.  Including a woman just diagnosed with Stage IV lung cancer who was very happy to hear that I was doing well over three and a half years later.  I may have to dig out my crown and polish it back up!

Last week we got some really good news.  I was able to get into a clinical trial that sent my tumor tissue away for complete testing.  As some of you know, I’ve had some genetic testing done along the way.  I’ve also come up negative each time.  This time the doctor had positive news!

I am the proud (?) owner of the RET fusion mutation.  Very rare, this mutation only occurs in 1-2% of lung cancer patients, mostly in young (ish) non-smokers with adenocarcinoma.  I could hardly believe the news.  This is so encouraging because this gives us a target.  There are already phase 2 and phase 3 clinical trials where they are testing drugs to see if they are effective against this mutation and they are getting really promising results.  One of the drugs is already approved for thyroid cancer which will make its journey to use in lung cancer even faster.

For now, we will not change anything.  I’ll have one more treatment in a couple of weeks and then a scan to see how I’m doing.  Whatever the outcome of the scan we will then make some plans to follow up on our next steps now that we have this new information.  It gives us many more options and we are so very thankful.

A couple of Fridays ago I was at a yoga class with some friends.  It was a healing class in a pretty small room.  We were doing some gentle poses and moving from one to the next in mostly silence.  I looked around at the faces of my friends and I thought, “I can’t remember ever being happier with my life.”

I know that sounds so crazy, but it is really true.  My kids are good, my marriage is good.  We are happy to be making plans to be with both of our extended families this summer because we really love being together.  My work is satisfying and church is awesome.  Our friends are the best around.  Life is really good.

I wish I could stay in that moment forever.  Because in that moment I realized that my happiness is not dependent on my circumstances and if I wait for my circumstances to make me happy I will miss out on so much.  My goal is to be aware of that every single day.

I wish the same for each of you.

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14 Responses to Mutant

  1. Dave says:

    I get those thoughts too from time to time . . . happy this day to see sunbeams, knowing that grand boys will visit . . ‘nuf.

  2. Holly says:

    Love you friend!! You are my inspiration!! So glad you are at a happy place!!

  3. Paula says:

    I am not surprised at the results. We always known that you are exceptional! Love you so much!

  4. Connie Green says:

    Wonderful news!!!

  5. Andrea Gurrola says:

    There you go again….amazing us all! Thank you for inspiring us!! Hugs!

  6. Emme says:

    You are a blessing to my life. I thank you for the reminder to live in the moment! You will miss out if you look too far ahead. Thank you Darling ❤️

  7. Molly says:

    Sara, you never fail to bring me to tears – - not of sadness but of the overwhelming gratitude for God’s grace, mercy, and love. You are a beacon of those qualities, lighting the way for others. May you and your family continue to be blessed to be a blessing!

  8. Amy says:

    You are a very wise woman. Great news will continue to follow!

  9. Jill McWilliams says:

    Godly words from a Godly woman. Love you, Sara! Thrilled to hear the news that you are going to be a part of this clinical trial…praying for healing and wholeness.

    Hugs~

  10. Janece Holsinger says:

    ….i hear your voice…you make me Laugh out Loud..(really laugh)…as the tears bolter down my cheeks !!! …you share joy to all you touch !!! janece

  11. Lisa says:

    Thank you for your inspirational words. ..happiness is not dependent on my circumstances … Definitely something for me to strive for.

  12. Jen Lincoln says:

    You are such a constant inspiration to me, Sara. I found out last month that my breast cancer metastasized to my lungs, liver, and some (assorted) bones and I am now a Stage IV gal, too. I am fighting the good fight in chemo again with the Lord right beside me every day. Thank you for the gift of your words.

  13. Dagmar Doland says:

    I also love yoga! Take two classes a week. You are absolutely correct that it is such a healing practice and both of the instructors are absolutely wonderful. I thank God each day for all that I have and try not to take anything for granted. Sending healing prayers your way!

  14. Mary Benze says:

    Will you be going to Webster at all? I will be there visiting my sister (Dolores Kellett) July 5-9. I would love to meet you in person (have met Jim before).

    I’m adding you to my prayer list. Also praying for my brother-in-law Bob who has Stage IV melanoma (has progressed to his brain) and just got accepted in a clinical trial at Yale U. hospital in New Haven. And for Joni, who has pancreatic cancer, but at an early stage that it’s hoped is treatable (cureable?).

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